Mary Rose Blackduck, a former Tłı̨chǫ broadcaster from Yellowknife, traveled to the University of Alberta Hospital after experiencing multiple health issues. Despite visiting doctors in Yellowknife several times and reporting muscle spasms, cramps, and weakness, she faced challenges in receiving a proper diagnosis. After spending nearly $6,000, she was diagnosed with amyotrophic lateral sclerosis (ALS), a rare nervous system disease with a life expectancy of two to five years post-diagnosis.
The Northwest Territories Health and Social Services Authority (NTHSSA) mentioned the complexity of diagnosing ALS due to the absence of a definitive test and the variability of early symptoms. The department also highlighted the lack of a full-time neurologist in the territory, leading to reliance on visiting neurologists from Alberta.
Blackduck, now coming to terms with her diagnosis, is preparing for the challenges ahead. She anticipates losing essential functions like speech and mobility, expressing concerns about the progression of the disease. While contemplating a move to Edmonton for better support services, she acknowledges the absence of ALS-specific support groups in the N.W.T. Blackduck is focusing on organizing her affairs and appreciating the time she has left.